Bonnie Liltz |
On Saturday November 25th,
Bonnie Liltz was found dead in her apartment, the cause an apparent suicide. Her
death is a blot on the consciences of all of us living in Illinois. In 2015, Bonnie
Liltz administered a fatal overdose to her 28- year old daughter Courtney, who was
severely mentally retarded, mute, unable to walk, and wearing diapers. Bonnie
Liltz suffered from cancer and was terminally ill. She feared what would happen
to her daughter after her death. For her crime, she was sentenced to four years
in prison for involuntary manslaughter. After being sent home for medical treatment, she was ordered back to prison. Rather than return there, she killed herself. Why was she sent to prison in the first place?
Bonnie Liltz was a poster child for everything wrong with Illinois' inadequate services for the developmentally disabled. Her fears were grounded in a tragic reality. Having worked as a social worker with the
developmentally disabled for many years, I heard this fear expressed by many
parents. Those parents' fears were realistic, also. “Let her die the day after I do,”
they would say. It often sounded like a litany. I encouraged them to put their
adult children on waiting lists for housing so they could choose a good place while
they were still on this Earth. The variation in quality of places was huge.
Without someone to advocate for their children, they could end up in a very
inadequate facility where they might even be mistreated or abused. “Their sister (or brother) will take care of her (him).”
But what if they wouldn’t. What if there was no other family member to take over.
While I’m not advocating mercy
killing, I understand why Bonnie Liltz felt she had no other
alternative. She was a single mom and Courtney was her only child. She had no one on whom she could
depend to advocate for her child’s well-being. She couldn’t count on the state
of Illinois and she was desperate.
Illinois, while somewhere
in the middle on per capita income, is 50th on per capita spending
for developmentally disabled adults. Disabled Illinois children are protected by
federal law guaranteeing them an education through age 21. After that, they can
be on waiting lists to obtain adult services such as group homes, intermediate
care facilities, and community based care for years. At present, about 20,000
adults are on waiting lists for residential facilities and community day
services some of them having waited for years. As bad as this always was, in
the past two years, it has gotten worse.
Without a budget for two
years, Illinois had stopped paying allotted promised funding to many agencies
serving the developmentally challenged. Without money to pay their staff, many
of these agencies had to close. The list of resources has grown shorter. The
waiting lists have grown longer. The wait for services has become interminable.
How many parents in Bonnie Liltz’ predicament will resort to her solution?
We in Illinois could
spend more on resources for the disabled or we can continue as we’ve been
doing. There would be more Bonnies and Courtneys, but we could go on avoiding
paying taxes to help the most vulnerable in Illinois. It’s up to us to decide
what kind of society we want to have.
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